General Summary of Position Responsibility:
As a member of the pediatric palliative care team at Lurie Children’s, the ideal candidate will work in a highly collaborative setting within the division to provide consultative support to primary medical teams. The individual will care for children from birth through adulthood transition of care with a large variety of potentially life limiting diagnoses including cancer, heart disease, metabolic/genetic disorders, neuromuscular and neuro-degenerative conditions. Responsibilities include managing complex symptoms, supporting identification and use of coping strategies, exploring and delineating goals of care, and facilitating medical decision-making – including those decisions around offered interventions and limitations. The individual will also assist in managing patients at end-of-life in both inpatient and outpatient settings.
ease refer to the General Summary section of the Job Description.)
1. Develops and utilizes communication skills with patients, families, and teams to evaluate understanding of diagnoses and disease trajectory, to elicit goals of care - including preferences for additional cure-directed treatment and/or limitations on interventions, and to assess values impacting medical decision-making, communication and/or surrounding end-of-life care.
2. Acquires and maintains updated evidence-based knowledge to manage intrusive and complex symptoms, including pain, that may impede the patient’s desired quality of life
3. Provides longitudinal support to patients, families, and individuals on clinical teams, especially in instances of real or perceived physical suffering, decisional ambivalence, or existential distress.
4. Coordinates with other clinicians and professionals, including community clinical teams/agencies involved with home palliative and hospice care.
5. Provides care to patients across the care spectrum including perinatal consultation, during inpatient hospitalization and in the ambulatory setting, including multi-disciplinary clinic settings.
6. Participates in non-clinical activities of the palliative care team including, but not limited to, staff education, quality improvement initiatives, research initiatives, and program development activities.
lease refer to the Essential Job Functions section of the Job Description.)
1. Strong interest in pediatric palliative care.
2. Previous experience in one or more of the following: pediatric/neonatal/cardiac intensive care, hematology-oncology, or pediatric palliative and hospice care.
3. APRN candidates: PNP certification or FNP with relevant pediatric experienc